Treading Water
Just when I think I’ll surely fall apart, life hands me a respite. Yesterday I woke up feeling the bleakest yet and could barely hold it together. But we turned on the TV (the silence is not a good thing) and just started cleaning our house. We’re cleaning in a way we haven’t done ever – pulling everything out of closets to wash out the shelves, tossing things ruthlessly (it’s really weird what you’ll find stuffed in the back of a closet), organizing everything carefully. I guess it’s just like all the detailed records I kept through infertility… putting something in order helps us feel more in control while everything else is spinning.
I feel anger too. What weighs on my mind is the fact that we will never be the same again. This is not something you can ever fix or truly move past – it will always be there, it will always affect us. It will affect us, our future pregnancy/ies, our future child(ren), for the rest of our lives. It has forever altered who we are. I struggle to accept that reality… that everything has changed. In one way we are right back where we started: childless, infertile. But it’s not the same. It’ll never be the same. We have hope, because we know we can get pregnant. But the weight of the loss will be there forever.
I do believe it will, in many ways, make us stronger – it has already made us stronger as a couple. We have been through a lot in our six years together, and each time of stress brought us closer together in the end. Every day I feel thankful that I have him at my side. I cannot possibly even describe to you what a wonderful husband I have. He makes me laugh when I really need to laugh, he holds me when I really need to cry, and every day he tells me how beautiful I am inside and out, and how lucky he is to have me as his wife.
After giving birth I couldn’t bear to touch my stomach. I would catch myself resting my hand there like I have been doing for months, then I would remember that there was no baby there anymore and I would choke up. It took a couple days before I could rub my shrinking belly without tears. Den and I cuddle up in bed all the time, and he used to always rest his hand protectively on my belly. It was comfortable, safe. After we got home from the hospital and were huddled up in bed against each other I noticed he was taking care to place his hand above my belly, on my ribs. I figured he was having the same problem I was. Last night he spoke up and admitted to me that he’d been careful to avoid my belly because he wasn’t sure if I would be okay with it. That’s just how he’s been…. he’s always checking in with me to see how I’m feeling, to make sure that I’m okay.
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I slept pretty well last night, considering. I am relieved that, at least temporarily, nights are getting a little easier. It’s not quite as raw as it was before, and every moment isn’t full of far too many thoughts. I woke up feeling… well, I don’t know if “okay” is the right word, but I didn’t wake up crying. We cleaned some more today, me taking breaks to respond to emails and try to write a little bit (I didn’t get too far).
By afternoon I was feeling a little bit anxious… anxious because it felt like I wasn’t remembering enough. I ended up pulling out Devin’s footprints and just stood there crying. I just felt like I needed to. Sometimes it feels like I’m settling too fast into being “just me,” infertile me… like the last 9 months were just a dream. And to be fair, sometimes I wish I could forget the last 9 months. There are times when it would be so much simpler to act like it never happened. But then I feel horrified by the thought and want to cling to all the memories. Good memories. Important memories. So I pull out his footprints as a reminder.
Den found me there, crying, and asked me what I had stumbled across. That has been happening a couple times a day: we’ll pull out something and find a baby item stored inside. Today I opened up my desk drawer and found the four positive pregnancy tests I had never been able to throw out. It sucks the breath right out of us as we remember when we bought the item, the plans we had for it, the hope it carried.
Today I had to go to Walmart. I was out of pads (it’s amazing how many you go through) and realized I really need breast pads as well. The engorgement sucks in a big way, but I wasn’t leaking at least. And then yesterday, probably about the exact same moment I said, “Well at least I’m not leaking,” they started leaking. Not only were my boobs extremely sore, itchy and smelled like cabbage, but now I had to walk around with a washcloth stuffed in my bra. I had intended to buy breast pads the first time we stopped at Walmart… but they are unfortunately to be found in the baby section. So that first trip to Walmart we “forgot” to go get them. I thought I would handle it better today… I’ve been doing pretty well in general. I think my infertility experience has made me a little more inured to seeing babies and baby things. I told Den I would be fine going alone, but he said he’d go with me. I walked quickly through the baby clothes (gulp) and straight to the “feeding” aisle… but couldn’t see the breast pads. It became increasingly harder to breathe as I quickly tried to find them among the bottles and formula and bibs…. I felt like I was underwater and couldn’t hold my breath for very much longer. There was a woman stocking shelves there and I asked her where they were (right in front of my nose, of course). I grabbed some and rushed out. I found Den in the men’s clothing section. “I got two steps in and changed my mind,” he said unsteadily. We had to take a moment to breathe before continuing to the register.
This grief thing is such an up and down journey…. you expect to zig, and instead you zag.
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Today we cleaned the living room and kitchen in an effort to get everything looking nice in time for dinner. We had invited BIL and SIL over – I hadn’t talked to them or seen them in a week, and as much as I wanted to talk to SIL I wanted to do it in person, not over the phone or email. This is the SIL who is due 7 weeks after I was, and obviously it’s going to be hard emotionally for us in so many ways. It was hard, I won’t lie. It was hard to see her looking pregnant, remembering how close Devin and their baby were going to be, cousins born mere months apart. But talking helped. I realized that I need to talk about him. I need for people to understand who he was.
I wasn’t sure how to read SIL at first – and I’m sure she wasn’t sure how to read me at first either. I could tell she felt unsure about being here, pregnant and knowing it would be a reminder to me of what we had lost. She and I got to sit down and talk. We cried. I could see the deep sorrow in her eyes.
I told her what Den and I had talked about yesterday: that their baby, our neice, was important to us… that we felt connected to her and we wanted to be involved in her life. It would be hard at times, for sure, but we desperately want to be able to celebrate this child and take part in her life. SIL teared up when I told her. She said she was glad, that she had hoped so but worried. A lot of the tension left the air. We talked for quite a while… about Devin, about pregnancy, about the future. It was a relief.
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I am trying to navigate these new waters, negotiate the new rules in life. Obviously I have had to shift things around a little bit, mentally.
I love all my friends – do not doubt that. But I’m sure they understand that I haven’t been able to read and post all that much. I think it’ll take a while before I’m able to follow along with those friends who were due around the same time I was. I have been checking everyone to make sure babies are born healthy…. I have been terrified for everyone.
I am finding so much comfort in those who have been through this before. I do not know how useful an in-person support group would be, especially one that meets only once a month. I need more than that right now – and to be honest, in-person support groups have never really done much for me. I find so much more support in my online support groups…. a place where I can go vent and talk every day, where I can form close friendships. But either way there is a definite solace to be found in talking to other bereaved parents. I know I have several comments and emails from other bereaved parents… I will be reading blogs and sending emails when I get a chance to.
I can certainly tell that the forums that I frequent/float in are going to be changing. I don’t intend to leave any place entirely, and I certainly don’t want to ignore any friends, but things will change. I guess change is inevitable.
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I’ve been thinking a lot about “next time.” Like I’ve said before, I have to believe that there will be a next time. Whether it happens on its own or we need to save up everything to afford IVF, Den and I agree that we will not stop trying. We will not give up. This cannot end with Devin.
If I were a praying type of person I’d be praying so hard that we could get pregnant on our own, without intervention. You hear stories of that happening after a pregnancy. We’ve never been the lucky type, but at some point you hope the universe has to balance itself out.
I just read something on a forum written by a bereaved parent that struck me: she mentioned wanting another child, not just desperately wanting your lost child back. That’s what made me most anxious about the thought of getting pregnant again, the idea that it’s a different child. Even if I get pregnant again right away with no help, even if I have a perfect pregnancy with a perfect outcome, it will never be Devin. The fear of never getting pregnant again is an added worry, an added grief. But I can never believe that being pregnant again will ever, ever change this. It will give us renewed hope that this journey will end with a live child. But it will never change what has happened.
I think about this future child. I actually feel guilty in some way, that this child will have to carry the weight of knowing that their older sibling died. I don’t know why that bothers me so much, but it does. It feels like an unfair burden to place on any child. Devin will always remain perfect in our eyes. One of my first thoughts after he was born was, “How will any other baby we have ever, ever be as perfect as this one?” It feels like Devin was everything we ever wanted. Even his name was perfect – it took us 3 years to find the perfect name for him. We were so happy to be able to use it.
Den worries that Devin was his only chance to have a son. Not that he would ever, ever love a daughter any less, but Devin was his dream come true. At that horrible ultrasound when they told me my baby was dead the first thing I said while freaking out was, “Oh my god, my husband, my husband!” I’m sure it sounded like I was asking for him… and yes, I wanted – needed – him there right now. But what was going through my head was, oh my god, my husband, how is he ever going to survive this? This is going to break his heart a million times over. It was all I could think about… how this was our miracle baby, the son he’d been waiting 20 years for. And I know he thinks about it too.
On the other hand sometimes I worry if our second baby is another boy, like there will always be a comparison. More of that guilt for baggage the child must live with. Will we use the same theme? How much of what we picked out for Devin is appropriate to use for someone else? Not like it really matters, not like a baby would notice, not like Devin would mind. But in some ways it feels wrong. And what the hell would we name him? Even Devin’s name was freaking perfect, and nothing else comes close. It’s upsetting to me, thinking that our next child would have a name that we didn’t love as much…. that it’s unfair.
It’s just crazy and stupid how many weird thoughts and emotions come and go through my brain in a day. I try not to judge them, I try not to obsess on any of them. I have to feel them, I can’t deny them… as I keep telling Den, you feel what you feel, there is no right and wrong. But sometimes that’s hard to really believe in your heart.
