Relaxing Doesn't Make Babies

Stillbirth Awareness and Research Act

October 8, 2008 — 7:51 pm

So you know I’m rather passionate about spreading awareness. Let’s make sure the lawmakers understand that this is an issue they cannot ignore! In addition to the steps below, we need to write in to our representatives in Congress and tell them that YES we need this bill to pass. WE NEED better research on why stillbirths happen. This is the only way we’re going to figure out how to prevent stillbirths them from happening. In this society, with all our technology, all our fancy machines, all our knowledge, 1 in 115 babies DIE between their 20th week of pregnancy and birth. This is unacceptable. We need to do better than that.

Full text of the legislation

Where to go to find out who is the Representative you should be writing to

Sample letter you can send, from First Candle

Also,

Antigone spearheaded a blogging campaign:

October 15th is National Pregnancy and Infant Loss Remembrance Day in the United States. More than 25,000 children are stillborn in the United States every year leaving mothers, entire families and communities devastated. Estimates of the rate of occurrence of stillbirth make it at least as common as autism.

Stillbirth is not an intractable problem. Greater research would likely significantly reduce its incidence, but good research requires good data. H.R. 5979: Stillbirth Awareness and Research Act is under consideration by Congress. This proposed bill would standardize stillbirth investigation and diagnosis, thus providing more data for the needed research. Better research means fewer children born still.

On October 15th, remember the thousands of unfinished children lost and the families who remain to grieve them. Honor them by taking action. Let’s help pass H.R. 5979.

Action Steps:

Step 1. Use Your Blog to Enlist Others-Copy the contents of this entire post and publish it on your blog immediately.

GOAL: Enlist 10 of your readers to spread the word

Step 2. Use Your E-mail to Enlist Others-E-mail 5 bloggers and ask them (nicely and in an unspammy way) to publish these action steps on their blog. Consider contacting celebrity bloggers, political bloggers, medical bloggers, or bloggers who are not part of your reading community.

GOAL: Enlist 3 bloggers outside of your normal blog sphere to spread the word in other online communities.

Step 3. Help Pass the Stillbirth Awareness and Research Act-By October 15th, publish a post on your blog supporting H.R. 5979 Stillbirth Awareness and Research Act. For maximum impact, title your post: “Stillbirth Awareness and Research Act.”

GOAL: 1,000,000 Google results on October 15th when that term is searched for. Currently, Google only returns 20,400 pages – most of which have nothing to do with the bill.

6 responses to “Stillbirth Awareness and Research Act”

  1. MDOD says:

    Just wondering if you have any stats on how many of the “1 in 115” babies that die between 20 weeks and term were non-viable for genetic reasons?

  2. Nat says:

    No… I don’t have anything like that. Unfortunately there really is very little stats on any of it, which is why this bill is so necessary. Right now there is no central research being done on why babies die, what percentage are genetic, or cord accidents, or placental reasons, and so on and so forth. One of the first steps in tackling this huge issue is understanding the WHY.

    The stats say that in 50% of the cases they cannot even FIND a reason. Maybe a cord compression issue. Maybe something else. They run the tests and don’t find anything obviously wrong. That is a horrible limbo to live in. I actually feel very thankful that we know exactly what happened to Devin and we know exactly how often it happens. It makes it a hell of a lot easier to plan the next pregnancy having some sort of data.

    And, yes, the 1 in 115 is a guestimate. That stat is from stillnomore.org, but again, there’s no central reporting agency so it may even be higher than that.

  3. Shilpa says:

    I don’t blog so I can’t really do what you’ve asked, but I did write my congresswoman about this and urged about 50 or so of my friends to do the same (and I think they will do it b/c they all know my brother and SIL- who lost their daughter in the 41st week to reasons unknown- maybe cord compression).

    I’m really glad you posted this though- hopefully the bill will pass. It really does need to.

    (And to others who want to write to their congressperson, the instructions are here: http://www.firstcandle.org/advocacy/adv_letter.html)

  4. Nat says:

    Thanks for that link, Shilpa!

  5. Me says:

    I have blogger set to not have search engines crawl my blog… sorry honey!

  6. Nat says:

    Me – So do I, actually. But I posted it anyways, LOL. Spreading the word.